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Table 1 Representative term cluster with prevalence and assigned topic

From: Patients’ perspectives on, experience with and concerns about crohn's disease: insights from Chinese social media

Representative term cluster

Prevalence

Topics

Crohn's disease, colonoscopy, symptom, ulcer, abdominal pain, hematochezia, hospital, pathology, inflammation, gastroscope, large intestine, consult

22.8%

Diagnosis and symptoms

Mood, mentality, children, patient, parent, pain, stress, friend, love, wife, family, help, life, future, anxious, sleep, go home, husband, hope, daughter, time, collapse

13%

Individuals and family

Anal fistula, abscess, wound, operation, intestinal obstruction, nutrient solution, nasal feeding, hospitalization, complication, anus, arthritis, narrow, fibrosis

11.9%

Complications and surgery

Research, fecal bacteria transplantation, superoxide, activity, cytokine, clinical experiment, cell, news immune system, gene technology, stem cells, placebo, news

9%

New therapies

Pathogeny, sensitive, born, susceptibility, erosion, Pathology, histological examination, infect, alcoholism, habit, environment, food, granuloma

6.9%

Etiology and mechanism

Hospital, doctor, Beijing, Shanghai, expert, professor, Peking Union Medical College, Sun Yat-sen university, SIR RUN RUN SHAW hospital, Zhejiang, Zhejiang University, General Hospital of Eastern Theater Command, Nanjing, Wuhan, West China Medical Center, XIANGYA Hospital

6.3%

Professional treatment support

Food, diet, vegetables, nutrition, digestion, milk, vitamin, noodle, protein, fruit, egg, pepper, drinks, greasy, rice, seafood, fried, meat, bread, fluid

5.1%

Diet and nutrition

Traditional Chinese medical science, traditional Chinese medicine, meridians, Qi and blood, body fluid, spleen deficiency, Codonopsis pilosula, prescription, traditional Chinese medicine hospital, Chinese herbal enema

4.8%

Traditional Chinese medicine treatment

Infliximab, curative effect, Adalimumab, ustekinumab, biological agent, medication regimen, price, cost, injection, antitumor necrosis factor, antibody

4.7%

Biological agent

Hormone, Mesalazine, azathioprine, prednisone, white blood cell, take medicine, Tuberculosis, positive, drug addict

4.7%

Traditional therapeutic drugs

Medical insurance, reimbursement, discount, country, import, on the market, National Healthcare Security Administration, offsite medical treatment, bill service, Payment of hospitalization fee

3.3%

Health insurance policy

Side effect, allergy, pain, invalid, drug resistance, hemorrhage, innutrition, recrudescence, progress, feel, throat, occult blood, occult blood,

2.7%

Side effect

Taste, quality guarantee period, experience, curative effect, valid, insist, useless, share, attention, advice, taboos,

2.1%

Medication experience

Expensive, selling drugs, at one’s own expense, cost, countryside, money, exchange, amount of money, cheap, fundraising, poor, economic, waste, low price, sell

1.6%

Financial situation

Cause, work, government officials, student, obesity, appearance, university social intercourse, society, community, inferiority, trouble, interpersonal relationship, estranged, high school

1%

Social impact