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Table 2 Representative quotes regarding participation in decision making between end ileostomy and ileal pouch-anal anastomosis

From: Ileostomy or ileal pouch-anal anastomosis for ulcerative colitis: patient participation and decisional needs

Theme

Representative quote

Patient-led

“I think I had it pretty good, in terms of decision time, and options, and the ultimate responsibility to make that decision by myself. I didn't feel as though I was between a rock and a hard place. I could choose either way, and everybody involved would be completely fine with that.”

Shared with surgeon

“I would definitely like to get all the information possible from the surgeon…and I would like to bring my thoughts into it, and have a back-and-forth conversation about it.”

Surgeon-led

“I deferred totally to [the surgeon]. At that time, I hadn't researched enough. I didn't know enough.”