Table 1 Characteristics of study participants in 2015 and 2006 surveys
Variables | 2015 survey | 2006 survey |
|---|---|---|
No. sampled | 4000 | 2000 |
No. of completed and returned questionnaires | 1584 | 788 |
Response rate | 39.6% | 39.4% |
Sex – No. (%) | ||
 Female | 1151 (72.7) | 559 (70.9) |
 Male | 432 (27.3) | 224 (28.4) |
Average age at survey – Mean (SD) | 56 (21) | 52 (19) |
Average age at diagnosis – Mean (SD) | 44 (20) | 41 (19) |
Age at diagnosis (categories) – No (%) | ||
  < 18 | 188 (12.8) | 97 (12.4) |
 18–34 | 225 (15.3) | 134 (17.2) |
 35–44 | 244 (16.6) | 188 (24.1) |
 45–54 | 301 (20.5) | 153 (19.6) |
 55–64 | 277 (18.8) | 128 (16.4) |
 65+ | 236 (16) | 80 (10.3) |
Family members with diagnosed CD – No. (%) | ||
 Respondent only person | 1237 (79) | 728 (93) |
 At least one other family member diagnosed | 322 (21) | 55 (7) |
Following a GFD – No. (%) | ||
 All the time | 1427 (90.8) | N/A |
 Most of the time | 131 (8.3) | N/A |
 Some/little/none of the time | 14 (0.9) | N/A |