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Table 4 Representative quotes regarding ways to improve decision-making between end ileostomy and ileal pouch-anal anastomosis

From: Ileostomy or ileal pouch-anal anastomosis for ulcerative colitis: patient participation and decisional needs

Theme

Representative quote

Desire peer education

“It would have been a great tool to be able to meet with a group of women and lay out all the questions on paper, you know, and have them generally talk to me about that. It would have been much easier”

Earlier consultation with surgeon

“Earlier discussion of the surgery so that it's not this far off and away foreign ‘it doesn't happen to me’ kind of situation, because I think so many people…had they had a successful surgery when they were healthy, and in a good position to do so, life might be better.”

Desire more information

“I took what they provided me, and I did more in-depth research on my own…they could have given me something with a lot more information in it. And I could have benefited from that.”