Table 2 Main themes emerged from patient interviews
Main concerns The health of fetus/infant Effect of IBDa medications on pregnancy, fetal, and neonatal outcomes and their safety during breastfeeding IBD and Delivery |
Main information needs When is the ideal time to become pregnant when you have IBD? How does my IBD effect my fertility? Will I be able to breastfeed with IBD? Can I have a vaginal delivery? Will I pass IBD or my immune system to my baby? Will any of my IBD drugs pass through to my baby? (during pregnancy & breastfeeding) |
Feedback on PIDA Quantity of information on the slides was not overwhelming Nothing seemed to be missing or too elaborate Information was presented in a neutral light |
Suggested improvements to presentation or content Pictures and diagrams to help visualize information Statistics for example, likelihood of IBD inheritance and flares Summary page and links to further information Suggestions how to improve communication between specialists Sexual function and how it is impacted by IBD Pregnancy related gastrointestinal symptoms vs IBD related symptoms Laboratory changes during pregnancy Safety or recommendations for exercise during pregnancy Analgesia during delivery Any special things for adjusting to home life in the presence of IBD |