From: Distinct clinical phenotypes for Crohn’s disease derived from patient surveys
last_flare: When was your last IBD flare period? |
( ) Less than 3 months ago [1] |
( ) 3–6 months ago [1] |
( ) 6–12 months ago [0] |
( ) More than a year ago [removed] |
typical_adbom_pain: How often were you troubled by pain in your abdomen during a typical flare last year? |
( ) All of the time [1] |
( ) Most of the time [1] |
( ) A good bit of the time [1] |
( ) Some of the time [1] |
( ) A little of the time [0] |
( ) Hardly any of the time [0] |
( ) None of the time [0] |
abdom_pain_severity: How intense was your worst pain rated on a 0–10 scale, where 0 is 'no pain' and 10 is 'pain as bad as could be' during a typical flare in the last year? |
( ) 0–4 [0] |
( ) 5–10 [1] |
bowel_movements: Think about the baseline number of daily bowel movements you had before you got sick. During a typical flare in the past year, how has your number of daily bowel movements compared to this baseline? |
( ) more daily bowel movements than my baseline [1] |
( ) the same number of daily bowel movements as my baseline [0] |
( ) I have had fewer daily bowel movements than my baseline[0] |
gi_symptoms: During a typical flare in the last year, what digestion-related symptoms have you experienced? |
Count the number of symptoms chosen. > = 3 [1] otherwise [0] |
[ ] Diarrhea; [ ] Ribbon-shaped stool; [ ] Blood tinged stool; [ ] Blood in the toilet bowl; |
[ ] Bloating; [ ] Abdominal pain; [ ] Excessive flatulence; [ ] None of the above |
surgery_any: Have you undergone any surgeries to treat your IBD? |
( ) yes [1] and ( ) no [0] |
symptoms_last_year: Which of the following best describes your IBD-related symptoms in the last year? |
( ) Remission (no symptoms) [0] |
( ) Mild symptoms (some symptoms but no need for steroids or immunosuppressive or biologic medication) [0] |
( ) Periods of flares and remissions (flares requiring steroids or immunosuppressive medication) [1] |
( ) Chronically active disease (continual experience of moderate to severe symptoms) [1] |
peripheral_arthritis: Joint pain or stiffness in your arms and legs |
( ) yes [1] and ( ) no [0] |
axial_arthritis: Joint pain or stiffness in your back or spine |
( ) yes [1] and ( ) no [0] |
osteoporosis: Osteoporosis |
( ) yes [1] and ( ) no [0] |
osteopenia: Low bone density or bone loss (osteopenia) |
( ) yes [1] and ( ) no [0] |
skin: Have you experienced any skin conditions? |
( ) yes [1] and ( ) no [0] |
fissure: A fissure (#40) |
( ) yes [1] and ( ) no [0] |
abdominal_abcess: An abscess in your abdomen |
( ) yes [1] and ( ) no [0] |
perianal_abcess: Perianal abscess (an infection around the anus) |
( ) yes [1] and ( ) no [0] |
stricture: A stricture (narrowing or blockage of the bowel) |
( ) yes [1] and ( ) no [0] |
psc: Primary sclerosing cholangitis (PSC) |
( ) yes [1] and ( ) no [0] |