Table 2 The seventeen phenotypic features observed by patients who had a flare in the last 12 months
From: Distinct clinical phenotypes for Crohn’s disease derived from patient surveys
| last_flare: When was your last IBD flare period? |
| ( ) Less than 3 months ago [1] |
| ( ) 3–6 months ago [1] |
| ( ) 6–12 months ago [0] |
| ( ) More than a year ago [removed] |
| typical_adbom_pain: How often were you troubled by pain in your abdomen during a typical flare last year? |
| ( ) All of the time [1] |
| ( ) Most of the time [1] |
| ( ) A good bit of the time [1] |
| ( ) Some of the time [1] |
| ( ) A little of the time [0] |
| ( ) Hardly any of the time [0] |
| ( ) None of the time [0] |
| abdom_pain_severity: How intense was your worst pain rated on a 0–10 scale, where 0 is 'no pain' and 10 is 'pain as bad as could be' during a typical flare in the last year? |
| ( ) 0–4 [0] |
| ( ) 5–10 [1] |
| bowel_movements: Think about the baseline number of daily bowel movements you had before you got sick. During a typical flare in the past year, how has your number of daily bowel movements compared to this baseline? |
| ( ) more daily bowel movements than my baseline [1] |
| ( ) the same number of daily bowel movements as my baseline [0] |
| ( ) I have had fewer daily bowel movements than my baseline[0] |
| gi_symptoms: During a typical flare in the last year, what digestion-related symptoms have you experienced? |
| Count the number of symptoms chosen. > = 3 [1] otherwise [0] |
| [ ] Diarrhea; [ ] Ribbon-shaped stool; [ ] Blood tinged stool; [ ] Blood in the toilet bowl; |
| [ ] Bloating; [ ] Abdominal pain; [ ] Excessive flatulence; [ ] None of the above |
| surgery_any: Have you undergone any surgeries to treat your IBD? |
| ( ) yes [1] and ( ) no [0] |
| symptoms_last_year: Which of the following best describes your IBD-related symptoms in the last year? |
| ( ) Remission (no symptoms) [0] |
| ( ) Mild symptoms (some symptoms but no need for steroids or immunosuppressive or biologic medication) [0] |
| ( ) Periods of flares and remissions (flares requiring steroids or immunosuppressive medication) [1] |
| ( ) Chronically active disease (continual experience of moderate to severe symptoms) [1] |
| peripheral_arthritis: Joint pain or stiffness in your arms and legs |
| ( ) yes [1] and ( ) no [0] |
| axial_arthritis: Joint pain or stiffness in your back or spine |
| ( ) yes [1] and ( ) no [0] |
| osteoporosis: Osteoporosis |
| ( ) yes [1] and ( ) no [0] |
| osteopenia: Low bone density or bone loss (osteopenia) |
| ( ) yes [1] and ( ) no [0] |
| skin: Have you experienced any skin conditions? |
| ( ) yes [1] and ( ) no [0] |
| fissure: A fissure (#40) |
| ( ) yes [1] and ( ) no [0] |
| abdominal_abcess: An abscess in your abdomen |
| ( ) yes [1] and ( ) no [0] |
| perianal_abcess: Perianal abscess (an infection around the anus) |
| ( ) yes [1] and ( ) no [0] |
| stricture: A stricture (narrowing or blockage of the bowel) |
| ( ) yes [1] and ( ) no [0] |
| psc: Primary sclerosing cholangitis (PSC) |
| ( ) yes [1] and ( ) no [0] |