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Table 3 Information of the five most popular WeChat official accounts (from August 16, 2017 to August 16, 2018)

From: Internet and WeChat used by patients with Crohn’s disease in China: a multi-center questionnaire survey

Official WeChat accounts

CCCF

IBD in Love

The IBD team of Sir run run Shaw hospital

IBD Academic Officer

The World of Gastroenterology

Organization

The China Crohn’s & Colitis Foundation

The 6th hospital of Sun Yat-sen university

Sir run run Shaw hospital of Zhejiang University

Technology company and medicine related person

Technology company and medicine related person

Duration since setting up

55 months

47 months

46 months

16 months

48 months

Total number of articles

260

124

59

393

147

Update frequency (days) a

1.40

2.94

6.19

0.93

2.48

Average reading number for each article

1479 ± 1174

1176 ± 1060

1419 ± 849

1092 ± 665

1110 ± 880

Highest reading number

10,810

4885

5626

6084

4234

Comments

6.51 ± 10.38

1.60 ± 3.58

1.49 ± 5.41

1.41 ± 1.92

0.32 ± 1.06

Likes

23.07 ± 20.85

13.90 ± 12.36

24.60 ± 31.00

12.58 ± 7.12

6.38 ± 6.82

Focus on CD

249 (96%)

106 (85%)

57 (97%)

346 (88%)

115 (78%)

Topic types [number (percentage%)]

 1.Notices in diet and daily life

20 (8%)

12 (10%)

4 (7%)

13 (3%)

8 (5%)

 2.General disease introduction

28 (11%)

4 (3%)

7 (12%)

85 (22%)

77 (52%)

 3.Medication advances and side effects

10 (4%)

11 (9%)

5 (8%)

109 (28%)

11 (7%)

 4.The prognosis and influencing factors

9 (3%)

6 (5%)

4 (7%)

70 (18%)

7 (5%)

 5.Policy about subsidies and discounts for treatment

0 (0%)

1 (0.8%)

1 (2%)

3 (0.8%)

0 (0%)

 6.Relevant knowledge about surgery

7 (3%)

3 (2%)

4 (7%)

29 (7%)

6 (4%))

 7.Communication with other patients

20 (8%)

15 (12%)

0 (0%)

0 (0%)

0 (0%)

 8.Stories about defeating the disease

13 (5%)

6 (5%)

8 (14%)

0 (0%)

0 (0%)

 9.Consensus and research

54 (21%)

17 (14%)

4 (7%)

66 (17%)

38 (26%)

 10.Education activities for patients

80 (31%)

32 (26%)

12 (20%)

7 (2%)

0 (0%)

 11.Clinical guidance

5 (2%)

6 (5%)

9 (15%)

1 (0.3%)

0 (0%)

 12.Others

7 (3%)

4 (3%)

0 (0%)

3 (1%)

0 (0%)

 Kappa value b

−0.143

0.143

0.286

0.259

0.000

  1. aUpdate frequency means average days to update an article paper
  2. bThe kappa value represents consistency between the topic types of the five most popular WeChat official accounts and information expectations of CD patients