Table 2 Participants' characteristics – disease related information (self reported)
Group A – clinical | Group B – DCCV | |||
|---|---|---|---|---|
Crohn's disease | Ulcerative colitis | Crohn's disease | Ulcerative colitis | |
Disease duration (median) | 9.0 yrs | 6.0 yrs | 13.0 yrs | 9.0 yrs |
Disease onset > 40 yrs | 14 (16%) | 3 (13%) | 7 (6%) | 6 (7%) |
Disease onset < 18 yrs | 16 (18%) | 3 (13%) | 28 (22%) | 15 (17%) |
Active disease | 38 (42%) | 19 (80%) | 28 (22%) | 31 (35%) |
Mild disease course | 22 (26%) | 5 (23%) | 44 (36%) | 32 (37%) |
Severe disease course | 35 (42%) | 7 (32%) | 45 (37%) | 21 (24%) |
Past resecting surgery | 38 (42%) | 1 (4%) | 73 (57%) | 10 (11%) |
Ostomy | 10 (11%) | 1 (4%) | 13 (10%) | 4 (5%) |
Ileocecal resection | 27 (30%) | 48 (37%) | ||
Perianal disease, current | 19 (22%) | 26 (21%) | ||
Perianal disease, ever | 23 (27%) | 36 (28%) | ||
Currently on steroids | 39 (44%) | 11 (48%) | 35 (28%) | 25 (28%) |
Other immunosuppression | 18 (20%) | 6 (25%) | 43 (34%) | 19 (21%) |
Total/substantial Colitis | 14 (64%) | 44 (49%) | ||
Left sided colitis | 5 (23%) | 29 (33%) | ||
Proctitis only | 3 (14%) | 16 (18%) | ||
Small bowel only | 14 (19%) | 25 (20%) | ||
Large bowel only | 14 (19%) | 37 (29%) | ||
Combined disease | 41 (56%) | 61 (48%) | ||
Upper Gi Involvement | 4 (5%) | 5 (4%) | ||
N | 90 | 24 | 129 | 93 |